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OMICS-ETHICS Research Group at the University of Montreal would like to invite you to participate in an anonymous web-based questionnaire addressing neurologists' views about the potential use of genomic testing, in particular Whole-Genome Sequencing (WGS) in their clinical practice, and the return of the results of such a test to patients.
Your participation is important, whatever your specialty in neurology, whether or not you already used genomic testing in your practice, whether or not you agree with such a use, and independently of your level of expertise in genetics.
Genomic diagnostic tools are currently being developed in various fields of neurology and their implementation into some clinical settings has already begun. Yet, there is no study aimed at assessing neurologists' perspectives towards the implementation of such a technology in their practice, and the scientific as well as the ethical challenges it can raise. It is very important to document and give due consideration to your views on such topics.It should take you 10 minutes to fill in the online questionnaire.
Please click on the following link and use the password "neuro" to access the online survey and to obtain more information about our study:
http://www.medsp.umontreal.ca/irspum_db/wgs
We kindly ask for your assistance in forwarding this message to your colleagues (neurologists).
Thank you in advance for your valuable contribution.
Béatrice Godard
OMICS-ETHICS Research Group
University of Montreal
Department of Social and Preventive Medicine
7101, av. du Parc, Montréal
This email address is being protected from spambots. You need JavaScript enabled to view it.<mailto:This email address is being protected from spambots. You need JavaScript enabled to view it.;
www.omics-ethics.org
Tel.: 514 343-6111, # 44036
This research is conducted by the Omics-Ethics Research Group, University of Montreal, Canada. You can find more information about NGS such as Whole-Genome Sequencing by clicking on the Glossary button on the bottom of the pages of this questionnaire .
Disclaimer: This announcement is made by the ICNA on behalf of the OMICS-ETHICS Research Group University of Montreal. The announcement or the research linked to is not financially supported by or in any way endorsed by the ICNA, nor is any implication of the same intended by OMICS-ETHICS Group, University of Montreal. A fee has not been paid to the ICNA for providing this announcement
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Since August 2014 there has been several reports in the US and Canada of children presenting with mostly focal limb weakness following recent respiratory tract infection and associated significant grey matter changes on spinal MRI.
The Centers for Disease Control and Prevention (CDC) is working closely with the Colorado Department of Public Health and Environment (CDPHE) and Children's Hospital Colorado to investigate a cluster of nine pediatric patients hospitalized with acute neurologic illness of undetermined etiology. The CDC have also put out a HAN (Health Alert Network) Advisory with guidance about reporting cases to state and local health departments.
13-year-old Will Cornejo of Lone Tree, Colo., recovers at Rocky Mountain Hospital for Children in Denver from what doctors suspect is enterovirus 68Dr Ann Yeh, University of Toronto says that over the last several weeks, the Hospital for Sick Children, in Toronto, have seen a cluster of children presenting with transverse myelitis with atypical neuroimaging findings involving significant grey matter involvement and in some case brain stem involvement With the risk of limited recovery given the extensive grey matter involvement at the Hospital for Sick Children they have taken an aggressive approach upfront with treatment with steroids and early plasma exchange if steroids are ineffective. They have reported some recovery with this treatment.
It is also not clear whether this could represent an infectious process (similar to polio) or post-infectious process and what the inciting agent might be. The neuroinflammation service at SickKids (Ann Yeh) is available to provide advice on any suspect cases.
Investigations are currently ongoing to find out whether these presentations are linked to the nationwide outbreak of EV-D68 associated with severe respiratory disease currently seen in North America.
View the CDC Official Health Advisory here
CDC Investigates Limb Paralysis in Children After Enterovirus 68 Outbreak (ABC News)
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The 11th Pan Arab Child Neurology Conference (PACNA) in collaboration with 19th Annual Conference of Egyptian Society of Child Neuro-Psychiatry (ESCNP) & International Child Neurology Association (ICNA), African Child Neurology Association ( ACNA ) and Both Saudi Epilepsy Society & Saudi Pediatric Neurology Society and 3rd Alexandria Pediatric Neurology Dept. will be held in Palestine Hotel, Alexandria, Egypt from April 1 - 3, 2015
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The Sudanese Association of Paediatricians in association with the International Child Neurology Association (ICNA), the African Child Neurology Association (ACNA) and the Sudanese Society of Neuroscience is happy to announce the ICNA educational meeting to be held in Khartoum, Sudan from 28-30 January 2015. The meeting will be held under the kind patronage of His Excellency the Khartoum State Minister of Health. The scientific programme comprising of plenary lectures and workshops. A Nile cruise and trip to the pyramids are also planned as part of the social programme.
The International faculty will consist of:
Jo Wilmshurst [South Africa]
Charles Newton [UK & Kenya]
Lieven Lagae [Belgium]
Pratibha Singhi [India]
Robert Rust [USA]
Harry Chugani [USA]
Kirsty Donald [South Africa]
In addition to a host of local speakers including:
Mustafa A. Salih
M. El Hadi El Malik
Khalid Mohmed
Khalid Ibraheem
El Sayed M. Ahmed
El Derdri M. El Amin
OsheikSeidi
Enaam N. Gashei
Maha A. El Seid
EhlamAbed El Rhman
Imad Y. Saad El Din
Ahmed Shouk
Haydar E.Babikir
General Information
DATE: 28th-30th. Jan. 2015
Venue: CORENTHIA HOTEL, KHARTOUM
Language: ENGLISH
Certificate of Attendance: Will be available upon request
Exhibition: The venue will also feature trade exhibitors including pharmaceutical companies
Abstracts and Presentations: A limited no of abracts would be accepted for poster presentations at the conference. Please sent in your abstracts as a word document ( A4, Arial, 12pt) to This email address is being protected from spambots. You need JavaScript enabled to view it. before 01.12.2014. Please include your full contact details in the email
To be sent as word a sword document size A4 with font arial size (12) on this e-mail:
On Line Visa:
To apply for an entry visa to Sudan please contact Dr Ali Arabi at This email address is being protected from spambots. You need JavaScript enabled to view it. for more information regarding visa requirements.
Conference President:
Prof. Eisa O. Elamin FRCP, FRCPCH, DTCH
PROGRAM ORGANIZERS
Ali Arabi
Mohmed O. Swar
Satti A/Raheem
SCIENTIFIC PROGRAM COMMITTEE
Mustafa A. Salih
Haydar E. Babikir
Before 15/12/2014 | After 15/12/204 | |
Registration Fee | £80 | £100 |
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The Sudanese Association of Paediatricians in association with the International Child Neurology Association (ICNA), the African Child Neurology Association (ACNA) and the Sudanese Society of Neuroscience is happy to announce the ICNA educational meeting to be held in Khartoum, Sudan from 28-30 January 2015. The meeting will be held under the kind patronage of His Excellency the Khartoum State Minister of Health. The scientific programme comprising of plenary lectures and workshops. A Nile cruise and trip to the pyramids are also planned as part of the social programme.
The International faculty will consist of:
Jo Wilmshurst [South Africa]
Charles Newton [UK & Kenya]
Lieven Lagae [Belgium]
Pratibha Singhi [India]
Robert Rust [USA]
Harry Chugani [USA]
Kirsty Donald [South Africa]
In addition to a host of local speakers including:
Mustafa A. Salih
M. El Hadi El Malik
Khalid Mohmed
Khalid Ibraheem
El Sayed M. Ahmed
El Derdri M. El Amin
OsheikSeidi
Enaam N. Gashei
Maha A. El Seid
EhlamAbed El Rhman
Imad Y. Saad El Din
Ahmed Shouk
Haydar E.Babikir
General Information
DATE: 28th-30th. Jan. 2015
Venue: CORENTHIA HOTEL, KHARTOUM
Language: ENGLISH
Certificate of Attendance: Will be available upon request
Exhibition: The venue will also feature trade exhibitors including pharmaceutical companies
Abstracts and Presentations: A limited no of abracts would be accepted for poster presentations at the conference. Please sent in your abstracts as a word document ( A4, Arial, 12pt) to This email address is being protected from spambots. You need JavaScript enabled to view it. before 01.12.2014. Please include your full contact details in the email
To be sent as word a sword document size A4 with font arial size (12) on this e-mail:
On Line Visa:
To apply for an entry visa to Sudan please contact Dr Ali Arabi at This email address is being protected from spambots. You need JavaScript enabled to view it. for more information regarding visa requirements.
Conference President:
Prof. Eisa O. Elamin FRCP, FRCPCH, DTCH
PROGRAM ORGANIZERS
Ali Arabi
Mohmed O. Swar
Satti A/Raheem
SCIENTIFIC PROGRAM COMMITTEE
Mustafa A. Salih
Haydar E. Babikir
Before 15/12/2014 | After 15/12/204 | |
Registration Fee | £80 | £100 |
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