Charlotte Dravet (July 14, 1936 – May 10, 2025)
Dr. Charlotte Dravet (July 14, 1936 – May 10, 2025), the esteemed French pediatric psychiatrist and epileptologist, renowned globally for her pioneering contributions to epilepsy research, passed away, leaving behind a profound legacy in the field of child neurology. Her…
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Professor Yoichi Sakakihara
It is with profound sadness that we announce the passing of Professor Yoichi Sakakihara on March 29. As the former President of the Asian and Oceanian Child Neurology Association (AOCNA), he was a towering figure in the field of pediatric neurology, leaving an indelible mark on…
Robert Rust
The ICNA along with the global child neurology community mourns the passing of Professor Robert S. Rust, MD. A towering figure in pediatric neurology, Dr. Rust was a true Renaissance man—a historian, physician, educator, mentor, scientist, ethicist, archivist, and humanitarian.…
FDA Approves First-Ever Brain-Injected Gene Therapy for AADC Deficiency
November 19, 2024 The U.S. Food and Drug Administration (FDA) has granted fast-track approval to Kebilidi (Eladocagene exuparvovec), the…
Advances in In-Utero Neurological Therapies: A New Era in Prenatal Care
Neurological disorders cause significant morbidity and mortality in children. However, cutting-edge in-utero therapies are transforming the…
First Gene Therapy for Children with Metachromatic Leukodystrophy
Lenmeldy (atidarsagene autotemcel) has received approval from the U.S. Food and Drug Administration. This marks a significant milestone as…
Support the children and their families impacted by the Earthquake in Türkiye & Syria
At least two powerful earthquakes struck in southern Turkey and northern Syria in the early hours of Feb. 6. At least 6,200 people have…
