Topic: Treating Ahead of Time: The Impact of Early Diagnosis in Treatable Pediatric Neurotransmitter Disorders Lecturers: Juhi Gupta (Moderator); Günce Başarır (Speaker); Elif Perihan Öncel (Speaker); Biju Hameed (Expert Faculty) When: Saturday, 21 June 2025 Time: 09:00 AM Eastern Time ( US/ Canada )

Speaker: Pinar Aydin O`Dwyer, When: Saturday, June 28th, 2025 Time: 09:00 AM Eastern Time ( US/ Canada )

Speaker: Banu Anlar When: jeudi, 19 Juin 2025 Time: 6:00 PM (CEST)

Speaker: Kirsty Donald When: Saturday, June 14, 2025 Time: 09:00 AM Eastern Time ( US/ Canada )

ICNA Advocacy Webinar Topic: Improving Diagnosis and Classification of Developmental and Epileptic Encephalopathies (DEEs) Speaker: Nicola Specchio When: May 20, 2025 Time: 1 pm CEST

Speaker: Dr. Haluk Topaloglu When: Saturday, May 31, 2025 Time: 9:00 AM EST About Topic: Paintings of children as the centre of attention or theme, from different periods and cultures in time, from thousands of years BC up until our contemporary times.

Speaker: Pr Kumaran Deiva When: Mercredi, Mai 21, 2025 Time: 7 PM CEST About Topic: La SEP de l’enfant est reconnue de plus en plus précocement grâce à l'amélioration des critères diagnostiques (2017 IPMSSG). Les traitements de fond utilisés chez l’adulte sont désormais validés chez l’enfant : le fingolimod a été le premier approuvé pour les formes pédiatriques récurrentes. D’autres biothérapies comme le natalizumab ou l’ocrelizumab sont utilisées hors AMM avec des résultats prometteurs. La prise en charge actuelle repose sur une approche précoce, individualisée et multidisciplinaire, intégrant neurologie,...

Topic: Clinical insights to genetic diagnosis of Developmental and Epileptic Encephalopathies: lessons from clinical cases Lecturers: Ana Carolina Piauilino (Speaker); Andrea Sayuri Murata (Speaker); Ana Carolina Coan (Expert Faculty); Maria Augusta Montenegro (Panelist); Maria Luiza Benevides (Moderator) When: Saturday, May 17, 2025 Time: 9:00 - 10:00 AM Eastern Time (US / Canada) About Topic: Early career investigators in Child Neurology will present two Developmental and Epileptic Encephalopathies (DEE) cases associated with CHRNA4 and GRIN2A variants. The cases will be followed by an expert discussion, highlighting the relevance of clinical clues to...

Speaker: Dr Mark Gorman, MD When: Saturday, May 10, 2025 Time: 09:00 AM Eastern Time ( US/ Canada ) About Topic: Opsoclonus myoclonus ataxia syndrome is a rare neuro-immunological disorder affecting the cerebellum. In children, the average age of onset is 18 to 24 months, and 50-60% of patients have a neuroblastoma as part of a paraneoplastic process. Due to its rarity, severity and lack of a definitive biomarker, numerous challenges exist, including delayed diagnosis, variation in treatment approaches, and historically poor cognitive and behavioral outcomes. However, significant progress has been made...

Speaker: Dr Caroline Sevin; When: April 18, 2025; Time: 6 pm CET (7 pm CEST); About Topic: This Webinar will focus on X-linked adrenoleukodystrophy (ALD), a genetic disorder affecting the nervous system and the most frequent leukodystrophy in children and males. We will discuss clinical symptoms, underlying molecular mechanisms and therapeutic approaches. We will also highlight the crucial role of early screening for early detection, enabling timely intervention and the importance of continuous follow-up to monitor disease progression and the effectiveness of emerging treatments. Learning Objective: ...