EPNS Research Meeting 2012
14. / 15. Dec 2012
Beuggen – Rheinfelden Germany, near Basel

Main topics for talks:
Epilepsy
Ataxia
Research groups:
ADHD
Ataxia
Autoimmune-inflammatory diseases
Developmental Neurology
Epilepsy
Neonatal Neurology, Neurodegeneration and Neuroprotection 
Neurometabolic diseases 
Neuromuscular diseasesDear Colleagues

We are very happy to invite you to the 3rd Research Conference of the EPNS in joined organization with the Statuskonferenz der Gesellschaft für Neuropädiatrie. We will meet from 14/15th of 
December 2012 in Beuggen, a nice cloister close to Rheinfelden/Basel. We hope that this  environment will stimulate international collaborations and research in Paediatric Neurology. 

There will be again eight different working groups: 

1. Ataxia
2. Autoimmun-inflammatory diseases 
3. ADHD (new)
4. Developmental Neurology
5. Epilepsy
6. Neonatal Neurology, Neurodegeneration and Neuroprotection
7. Neurometabolic diseases
8. Neuromuscular diseases

The leaders of these working groups have put together a short description of their respective themes and goals, which you can find in the latter part of this invitation. If you would like to participate actively in the preparation of a specific working group, feel free to contact your chair person!. We also hope that it will be possible for you to encourage young colleagues to join us for this meeting. It would be a unique opportunity for them to join a research group or to start their own project within the field with some support from an experienced researcher in the field. As usual there are also three plenary sessions, which this year will be organised from the group of 
ataxia and epilepsy. In these talks we try to give you an insight into hot research topics in the field.  At the final discussion each group will present their working group summary. There will again be an award of the EPNS research prize for the group with the most outstanding and innovative ideas for future research.

Concerning housing we have the possibility to accommodate 62 persons for sleeping in the cloister and additional rooms in a nearby hotel. This will be in one bed-, two bed- and some multi-bed rooms at a reduced rate. Please indicate your preferred type of accommodation (and room sharing) on the registration form. Room reservation will work on a first come-first serve basis. 

We hope that we succeeded in putting together an interesting and stimulating program for all of us and that we will see many young as well as advanced researchers over these two days in Beuggen. 

We are looking forward to meeting you again.
Sincerely yours,

Prof. Dr. med. Barbara Plecko-Startinig 
Prof. Dr. med. Bernhard Schmitt Prof. 
Dr.med. Maja Steinlin

 

PROGRAM

PROGRAM PAEDIATRIC NEUROLOGY RESEARCH CONFERENCE
Beuggen, Germany, December 14-15, 2012
Friday, December 14, 2012
12.00-13.00 Arrival Registration Lunch
13.00-13.15 Welcome
13.15-13.45
Plenary Lecture Ataxia
Cerebellar and brainstem malformations: news form the Italian Registry
Enza Maria Valente, Rom (I) 
13.45-14.15 Genetics of ataxia in children: update from recent research
Andrea Nemeth, Oxford (GB) 
14.15-15.30 Working groups 1-8
15.30-16.00 Coffee Break
16.00-19.00 Working groups 1-8
19.30 Get together and Dinner
Followed by
Informal discussions over a glass of wine
Saturday, December 15, 2012
08.30-09.30 Working groups
09.30-10.00 
Plenary Lecture Epilepsy
Sleep, Epilepsy and Cognitive Function 
Reto Huber, Zürich (CH)
10.00-10.30 Neuromics Research Project
Volker Straub, Newcastle upon Tyn (GB)
10.30-11.00 Coffee Break
11.00-13.00 Presentations and Discussions of working groups 1-8
13.00-13.30 Final discussion 
Award of the EPNS Research Prize
13.30 Lunch/Farewell

Working groups and their topics - see also special flyers of different working groups!

Neonatal Neurology, Neurodegeneration and Neuroprotection 
Chair: Regina Trollmann (This email address is being protected from spambots. You need JavaScript enabled to view it.)
The discussion will cover newest research data on models of perinatal brain hypoxia and ischemia, their effects and their contribution to clarify the pathophysiology of hypoxic ischemic brain injury.You are welcome to bring your own ideas, to inform about your own model, to get help in choosing an appropriate model for your own research questions. Information on neuroprotective strategies will be shared and possible joint research on neuroprotectives in asphyxia will be discussed.

Metabolics
Chairs: Linda De Meirleir (This email address is being protected from spambots. You need JavaScript enabled to view it.)
Barbara Plecko (This email address is being protected from spambots. You need JavaScript enabled to view it.)

This year the metabolic group will focus on basal ganglia diseases. Following two invited lectures on  neuroimaging as well as Leigh Disease, the group will try to work on guidelines for pattern recognition and a standardized metabolic and genetic work-up. Participants are kindly invited to present unsolved cases and to found a collaborative network for unclear basal ganglia disease of probable genetic background.

Ataxia
Chair: Peter Baxter (This email address is being protected from spambots. You need JavaScript enabled to view it.)
Results of the validation of the SARA scale by Deborah Sival will be presented. Instructions on SARA scale will be given, followed by discussion on how to proceed for validation within different countries (cultures) and also interrater viability. Update on the Eurataxia database – and information on how to join the database from different centres. 

Developmental Neurology
Developmental Neurology comprises traditionally two focuses:
1.Systemic Neurology / Clinical Neurophysiology / Functional Imaging

Chair: Volker Mall 
(This email address is being protected from spambots. You need JavaScript enabled to view it.)
The focus of this group are techniques of advanced imaging, transcranial magnetic stimulation (and other techniques of clinical neurophysiology), evaluation of neuronal plasticity, early brain (re-)organisation and the context of brain structure and function. Further clinical issues of cerebral palsy are a focus of this group, especially quality of life evaluation, hip development as well as epidemiology.

2.The more classical Developmental Neurology (evaluation, outcome and intervention in 
Developmental Disorders)
Chair: Joachim Pietz (This email address is being protected from spambots. You need JavaScript enabled to view it.).
A key issue of infant and developmental neurology are the best methods to investigate infants and toddlers. It has been recognized that many classical and well-established parts of neurodevelopmental examinations unfortunately exhibit only low prognostic values. We will present some new developments and results in the area of infant assessment, and hope to share it with other groups working in this field. 

Neuromuscular group
Chair: Volker Straub (This email address is being protected from spambots. You need JavaScript enabled to view it.)
The Neuromuscular Working Group aims to discuss the latest research developments and plans relevant for the diagnosis, care and treatment of paediatric neuromuscular diseases. The discussion will focus on the application of new omics approaches, current and future clinical trials andinternational neuromuscular projects funded by the EU. The working group session will also provide an opportunity for scientists and clinicians to present own research ideas and results.

Autoimmune inflammatory diseases
Chair: Kevin Rostasy, Banu Anlar, Martin Häusler (This email address is being protected from spambots. You need JavaScript enabled to view it.)
"Participants of the autoimmune / inflammatory working group will have the opportunity to present 
own projects. The working group will also work on one specific scientific topic which remains to be 
defined. Proposals are still welcome."

Epilepsy
Chair: Alexis Arzimanoglou (This email address is being protected from spambots. You need JavaScript enabled to view it.) and Helen Cross (This email address is being protected from spambots. You need JavaScript enabled to view it.)
During the epilepsy working group meeting, new international research projects as well as the progress on previously presented projects can be discussed. There will also be an update on the EPNS epilepsy registry (a prospective database collecting clinical data in children presenting with epilepsy below the age of 1 year) , recently launched and involving already now more than 25 centers throughout Europe. More specifically, there will be a last review of the most important items in the database before a final European launch in January 2013. Two other European projects, coordinated by the Utrecht Group (Time to Stop Trial on discontinuation of AEDs following epilepsy surgery and a Randomized Controlled Clinical Trial on Treatment of Electrical Status Epilepticus in Sleep – ESES) will be presented and discussed.

Attention Deficit Disorder (new working group!)
Chair: Manuel Antonio Fernandez (This email address is being protected from spambots. You need JavaScript enabled to view it.)

In this new working group will try to bring together professionals from different areas to share experiences and work on developing unified programs of assistance, research and teaching in various 
aspects of interest in ADHD. Will address the main issues of interest including genetics, neuroimaging, new technologies in clinical care and seek to join forces to ensure better diagnosis and treatment of these patients. All stakeholders are invited to participate actively in this group with the intention of creating a network of experts to standardize the criteria for ADHD care in different countries

If you would like to participate actively in preparation of your workshop or if you would like to present something during your workshop please get into contact with the chair of your working group directly.On the homepage of the EPNS and GNP more detailed programs of some working groups will be updated on a regular base as the information is provided by the chairs of the working group.

http://www.epns.info/ http://www.neuropaediatrie.com

This information will be updated on a monthly base till November 2012.

Organization committee
Prof. Dr. med. Barbara Plecko-Startinig
Extraordinariat Neuropädiatrie
Kinderspital Zürich
Universität Zürich 
Steinwiesstrasse 75
8032 Zürich 
Tel.: +41 44 266 73 30
Fax: +41 44 266 71 63
This email address is being protected from spambots. You need JavaScript enabled to view it.

Prof. Dr. med. Bernhard Schmitt
Leitender Arzt 
EEG/Epilepsie Abteilung
Kinderspital Zürich
Universität Zürich
Steinwiesstrasse 75
8032 Zürich
Tel +41 44 266 75 92
Fax +41 44 266 71 65
bernhard.schmitt kispi.uzh.ch

Prof. Dr.med. Maja Steinlin
Abteilungsleiterin 
Abteilung Neuropädiatrie, Entwicklung und 
Rehabilitation
Universitätsklinik für Kinderheilkunde
Inselspital
3010 Bern
Tel +41 31 632 94 24
Fax +41 31 632 95 00
This email address is being protected from spambots. You need JavaScript enabled to view it.

Secretary
Marianne Probst
Abteilung Neuropädiatrie, Entwicklung und Rehabilitation
Universitätsklinik für Kinderheilkunde
Inselspital
3010 Bern
Tel +41 31 632 94 24
Fax +41 31 632 95 00
This email address is being protected from spambots. You need JavaScript enabled to view it.

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CEA-Sponsored Courses and Conferences in 2013

European Advanced Epilepsy Surgery Course, Brno, Czech Republics (22-26/1/2013)
For information contact: Prof. Cigdem Ozkara (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Prof. Kristina Malmgren (This email address is being protected from spambots. You need JavaScript enabled to view it.)

4th Training Course in Stereo-EEG, Lyon, France (12-16/2/2013)
For information contact: the Course Secretariat: This email address is being protected from spambots. You need JavaScript enabled to view it. or
Pr. Philippe Kahane (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Prof. Philippe Ryvlin (This email address is being protected from spambots. You need JavaScript enabled to view it.)

4th London-Innsbruck Colloquium on Status Epilepticus and Acute Seizures, Salzburg, Austria (4-6/4/2013)
For information contact: Prof. Eugen Trinka (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Prof. Simon Shorvon (This email address is being protected from spambots. You need JavaScript enabled to view it.) or conference secretariat: This email address is being protected from spambots. You need JavaScript enabled to view it. or at www.statusepilepticus2013.eu

A Comprehensive Course on Epilepsy – Medical and Social Aspects, Tashkent, Uzbekistan (17-21/4/2103)
For information contact: Prof. Alla Guekht (This email address is being protected from spambots. You need JavaScript enabled to view it.)

11th San Servolo Course on Brain Exploration and Epilepsy Surgery, Venice, Italy (14-25/7/2013)
For information contact: Prof. Giuliano Avanzini (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Metella Paterlini (This email address is being protected from spambots. You need JavaScript enabled to view it.) or see http://www.epilearn.eu or This email address is being protected from spambots. You need JavaScript enabled to view it.

7th Baltic Sea Summer School for Epilepsy (BSSSE7), Estonia (18-23/8/2013)
For information contact: Prof. Peter Wolf (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Petra Novotny (petranovotny@wolfstiftung. or BSSSE6 or BSSSE7 at http//www.epilelpsiestiftung-wolf.de/thtml

1st International Neuropathology Summer School for Epilepsy Surgery (INES), Erlangen, Germany (16-20/9//2013)
For information contact: Prof. Ingmar Blümcke (This email address is being protected from spambots. You need JavaScript enabled to view it.)

5th Eilat International Educational Course on the Pharmacological Treatment of Epilepsy (5thEilat Edu), Jerusalem, Israel (30/9-6/10/2013)
Fro information contact: Dr. Svein I. Johannessen (This email address is being protected from spambots. You need JavaScript enabled to view it.) or see Forthcoming conferences at http://www.eilat-aeds

7th Migrating Course on Epilepsy, Nicosia, Cyprus (3-9/11/2013)
For information contact: Dr. Savvas S. Papacostas (This email address is being protected from spambots. You need JavaScript enabled to view it.)

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AAN International Scholarship Award - applications due October 15

Dear Members of the Global Health Section,

Please share the information below with any potential candidates and let me know if you have any questions.

The AAN is now accepting applications for the 2013 International Scholarship Award. This scholarship is designed to provide eligible international candidates the opportunity to attend and participate in the Annual Meeting. It is not necessary to be a member to apply. The International Subcommittee will award up to thirteen scholarships to eligible applicants who demonstrate financial need and interest in attending the Annual Meeting. Five awards will be given based on the quality of the submitted abstract; eight awards will be given based on other criteria such as personal need and country of origin.

Recipient will receive:

· Waived registration for the 2013 Annual Meeting

· Waived fee to attend selected educational courses

· Waived fee to attend certain scientific programs

· Up to a $2,500 reimbursement toward Annual Meeting expenses to include hotel accommodations, round trip coach airfare to the American Academy of Neurology Annual Meeting and meal expenses. In order to be reimbursed, recipients will be required to utilize American Academy of Neurology travel services to arrange airfare and lodging. The scholarship recipients are responsible for obtaining their own visas, but the AAN will provide documentation that recipient has received the scholarship, if required to obtain the visa. Expenses over $2,500 will be the recipient's responsibility.

The application as well as eligibility requirements can be found at http://www.aan.com/science/awards/?fuseaction=home.info&id=33

Application Deadline is October 15, 2012.

Best regards,
Franziska Schwarz

Franziska B. Schwarz, CEM
Program Manager, Exhibits and Affiliate Meetings
American Academy of Neurology
201 Chicago Avenue South
Minneapolis, MN 55415
Direct: 612.928.6015 Fax: 612.454.2753
This email address is being protected from spambots. You need JavaScript enabled to view it. www.aan.com

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This is an invitation to all paediatric neurologists to join ICNA, an association that has repositioned itself to serve the needs of children with neurological and developmental conditions all over the world. Currently ICNA is represented by 6 major geographical areas with membership from 64 countries.

ICNA was founded in 1973 by a respected international group of paediatric neurologists who wished to advance the care of children with neurological problems throughout the world. The current mission of the association could be summarized as follows:

• To promote excellence in clinical care to children with neurological diseases globally
• To disseminate information by making relevant educational tools and opportunities available
• To foster evidence-based clinical and fundamental basic research

Yet, in order to do this the association has realized that it needs to reposition itself to meet the new challenges of this millennium effectively and timeously. After nearly 40 years the majority of paediatric neurologists worldwide had not joined the association. There may be many reasons for this, but it was clear that the association had to become more accessible to all.

It was also clear that in order to be an effective agent for improving neurological services worldwide, that the association not only promotes excellence in research and standards of care, but also specifically target countries and populations with limited resources, poor infra-structure and human resources to try and improve basic neurological care also for these children in need.

In order to meet the challenges, ICNA has embarked on the following:

• Scrapped all membership fees – this removes a financial barrier and allows all Pediatric neurologists to become active members of the association
• Simplified the application process and has established one membership category 
• Established ICNApedia (http://www.icnapaedia.org) as an electronic flagship resource.There are network possibilities for research, scholarly pursuits and networking. It is fully integrated with Facebook and LinkedIn networks.Over a hundred hours of online lectures are currently available online. Besides the content on ICNApedia is available in multiple languages (currently 56 and counting)! 
• Started an e-Journal – in order for ICNA to become a significant and leading intellectual role player in the field of child neurology internationally, the need to embark on an e-journal, to be edited by Prof Charles Newton, has become a priority. It is envisaged that the journal will provide a vehicle for rapid, free (at least initially), open access publication of child neurology papers.

Embarked on an outreach program to areas where a need had been identified, particularly in resource poor countries.
With the support of the President, Prof Harry Chugani, a workshop was arranged in Uganda. The theme was “Childhood epilepsy in resource poor countries” 1-4 February 2012. This meeting was attended by delegates from 19 counties in Africa.

The next workshop in Africa is being planned in Cape Town, February 2013. The meeting will focus on cerebral palsy (as requested by the delegates at the previous meeting) and there will also be a follow-up on the epilepsy meeting.
Mongolia – the first exploratory meetings will be held in October 2013. We will be represented by Banu Anlar & Linda De Meirleir.
Sponsoring regional education conferences and small teaching events

A workshop has been planned in Bangalore, 17-18 November, 2012. The theme for the meeting is “Childhood disability management for the Clinician – Doing it right in resource constraint settings” ICNA will be represented by Prof Michael Shevell and Pratibha Singhi.

The members of the Executive Board also make themselves available to give talks wherever the Board meets, usually in collaboration with e local Child Neurology Associations. A successful collaborative meeting was held in Prague in 2011, and the next collaborative meeting will be held in Kaunas, Lithuania in May 2013.

The ICNA has started a drive to collect used EEG equipment for use in Sub-Saharan countries encouraging collaboration with other international associations and societies such as International Pediatric Association (IPA), International League Against Epilepsy (ILAE) and World Federation of Neurologists (WFN). The ICNA has pledged its continuous support for the biannual international meetings. The next ICNC to be held in Brazil, Iguazu Falls 4-9 May, 2014. The ICNC for 2016 has been awarded to Amsterdam, The Netherlands.

ICNA has put several exciting and innovative processes in place to meet the challenges of becoming a truly representative international association to advocate for the optimal care of children with neurological problems worldwide by facilitating access for pediatric neurologists, through ICNApedia, establishing a vehicle for networking, developing research opportunities and the dissemination of relevant and up-to-date information and through international congresses and local workshops creating opportunities to up skill, teach and make state of the art information available to all professionals who manage children with neurological problems.

We would therefor like to extend a warm invitation to join this international organization. This is easily done by visiting our website http://www.icnapedia.org, where you could also learn more about our organization and the benefits to members. Please do not hesitate to contact me directly if you have any further queries, concerns or suggestions.

Hoping to hear from you soon.

Andre Venter
Chairman: Finance Committee
ICNA Executive Board
(This email address is being protected from spambots. You need JavaScript enabled to view it.)

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