Robert Rust
The ICNA along with the global child neurology community mourns the passing of Professor Robert S. Rust, MD.
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News
FDA Approves First-Ever Brain-Injected Gene Therapy for AADC Deficiency
November 19, 2024 The U.S. Food and Drug Administration (FDA) has granted fast-track approval to Kebilidi (Eladocagene exuparvovec), the first gene therapy in the United States administered via direct intracerebral injection. This approval represents a significant advance in the…
Advances in In-Utero Neurological Therapies: A New Era in Prenatal Care
Neurological disorders cause significant morbidity and mortality in children. However, cutting-edge in-utero therapies are transforming the management of these conditions, offering the potential to intervene before birth. Conditions such as spina bifida and genetic disorders…
First Gene Therapy for Children with Metachromatic Leukodystrophy
Lenmeldy (atidarsagene autotemcel) has received approval from the U.S. Food and Drug Administration. This marks a significant milestone as…
Support the children and their families impacted by the Earthquake in Türkiye & Syria
At least two powerful earthquakes struck in southern Turkey and northern Syria in the early hours of Feb. 6. At least 6,200 people have…
Michael V Johnston [1946 - 2022]
I am deeply saddened to learn that Michael V Johnston MD. Professor Emeritus of Pediatrics and Neurology at the Johns Hopkins University…
Alcy Torres Catefort (Sr) [1938 - 2022]
It is with great sadness we share that Alcy Torres Catefort Sr, MD, father of our esteemed colleague Dr. R. Alcy Torres, a global health…
