Sponsors and Exhibitors

The ICNC 2016 organisation offers a wide range of sponsoring and exhibiting opportunities.

In order to receive more information and the sponsoring prospectus, please contact us at icnc2016@mci-group.com


   PLATINUM

Logo-Shire 

At Shire, we enable people with life-altering conditions to lead better lives. We focus on developing and delivering innovative medicines for patients with rare diseases and other specialty conditions. This might be a therapy to treat an extremely rare and life-threatening disease such as Hunter syndrome or Fabry disease, or a medicine for a specialist condition such as ADHD or ulcerative colitis.

To realize our aspiration to become a leading global biotech, our efforts are concentrated on four key strategic drivers: growth, innovation, efficiency, and people. Our priorities are to drive optimal performance of our existing products, increase patient access to these medicines, and to build our pipeline through research and development and partnerships in order to deliver new medicines to patients.

PTC Therapeutics_Logo_4C 

PTC Therapeutics is a global biopharmaceutical company focused on the discovery, development and commercialization of novel orally administered drugs that target RNA mechanisms affecting protein production.  It is PTC’s mission to bring new therapies to patients affected by rare and neglected diseases such as cystic fibrosis and Duchenne muscular dystrophy. For more information please visit www.ptcbio.com.

   GOLD

NEW-LOGO-NVS Onc-RGB 

Novartis Oncology is a global leader in transforming outcomes for people living with cancer and other diseases. We offer a wide range of innovative therapies to help meet patient needs and our oncology pipeline is one of the strongest and most productive in the industry. Our research is driven by a distinctive scientific and clinical strategy focused on precision oncology – understanding how cancer develops on a genomic level and developing drugs that hone in on those targets. For more information about how we are transforming the treatment of cancer and other diseases, visit  www.novartisoncology.com

   SILVER

Biogen Logo-300x100 

Through cutting-edge science and medicine, Biogen discovers, develops and delivers to patients worldwide innovative therapies for the treatment of neurodegenerative diseases, hematologic conditions and autoimmune disorders. Founded in 1978, Biogen is one of the world’s oldest independent biotechnology company and patients worldwide benefit from its leading multiple sclerosis and innovative hemophilia therapies.

   BRONZE

Biocodex-logo 

BIOCODEX is a French independent pharmaceutical company relying on a global network of scientists and partners. This allowing to acquire, over the years, expertise in specific therapeutic areas, such as in orphan disease in children epilepsy, and now enables patients in over 100 countries to have access to its innovative medication. Powered by an industrial vision and innovation, BIOCODEX is committed to provide the best care to patients, emphasizing work on the long term in a constant dialogue with healthcare professionals.

UCB logo_reflex_RGB

UCB, Brussels, Belgium (www.ucb.com) is a global biopharmaceutical company focused on the discovery and development of innovative medicines and solutions to transform the lives of people living with severe diseases of the immune system or of the central nervous system. With more than 8500 people in approximately 40 countries, the company generated revenue of € 3.3 billion in 2014. UCB is listed on Euronext Brussels (symbol: UCB). Follow us on Twitter: @UCB_news

Educational committee

Coriene Catsman-Berrevoets (chair)
Oebo Brouwer
Jolanda Schieving

Socials

WELCOME RECEPTION

We would like to invite you to join the welcome reception at the RAI Amsterdam.
Visit the RAI and mingle with you conference colleagues and exhibitor in an informal atmosphere, enjoying drinks and small bites.

 Venue RAI Amsterdam
Europaplein 22
1078 GZ Amsterdam
 Schedule  Sunday 1 May 2016
   Opening Ceremony: 17.00-17.30
   Welcome Reception: 17.30-19.30
 Registration  This event is included in the registration fee.

CONGRESS OUTING

 Venue Scheepvaartmuseum / The National Maritime Museum Kattenburgerplein 1
1018 KK Amsterdam
 Schedule Wednesday 4 May 2016
Gala dinner 19.00-23.00
 Transfer Boat services are arranged from the conference venue to the Scheepvaartmuseum starting at 18.00 to 19.00. After 19.00 transportation should be arranged by yourself.
  Pendel busses will leave from the Scheepvaartmuseum back to RAI from 22.00-23.30
 Registration This event is paid and registration is mandatory

The National Maritime Museum is housed in ‘s Lands Zeemagazijn (the Arsenal). This historic building dates from 1656 and was designed by Daniel Stalpaert as a storehouse for the Admiralty of Amsterdam.

The Arsenal was built in the Golden Age, when Amsterdam was the largest port and market place in the world. Goods from all over the world could be bought right here. Today, over 350 years later, the Arsenal remains an imposing and impressive building with a great deal of character. It exudes history, making it the perfect location for The National Maritime Museum, which has been housed here since 1973.

Scheepvaartmuseum 

Scientific committee

ICNC 2016 scientific committee

Michel Willemsen (chair)
Marjo van der Knaap
Bwee Tien Poll-The
Linda de Vries
Deborah Sival
Raoul Hennekam

ICNA scientific committee

Helen Cross (chair)
Michel Willemsen
Linda DeMeirleir
Lieven Lagae
Jo Wilmshurst
Banu Anlar
Russell Dale
Michael Shevell
Ingrid Tein
Pratibha Singhi

Sponsored lunch symposia

These sponsored lunch symposia are not a part of the CME accreditation

Monday May 2nd   
12.15 – 13.45 Sponsored lunch symposium 3 – Tuberous Sclerosis Complex: new insights into seizures and cognition
Room: Forum
Novartis
.
Chair: Marie-Claire de Wit, the Netherlands
  1. Neurological and neuropsychiatric manifestations of tuberous sclerosis complex
    Petrus de Vries, South Africa
  2. Current treatments and emerging therapies for TSC-related seizures
    Paolo Curatolo, Italy
  3. Potential of early intervention on improving neurological outcomes
    Anna Jansen, Belgium

Sponsored lunch symposium 4 – Emerging Findings for CLN2 Disease Early Diagnosis and Management – At the Intersection of Epilepsy and Genetics
Room: Emerald Room
BioMarin Pharmaceutical

  1. CLN2 Disease and the Need for Early Diagnosis
    Ruth Williams, United Kingdom
  2. Insights into Natural History and Strategies to Optimise Patient Outcomes
    Angela Schulz, Germany
  3. Low Frequency IPS EEG – A Clue for Early Diagnosis
    Nicola Specchio, Italy
Tuesday May 3rd  
 12.15 – 13.45 Sponsored lunch symposium 3 – Identification of undiagnosed neurological disorders in paediatric patients: the hunt for Niemann-Pick disease Type C
Room: Emerald Room
Actelion Pharmaceuticals Ltd
.
Chair: Marc Patterson, U.S.A.
  1. A needle in a haystack: differential diagnosis of NP-C in the paediatric population
    Charles Lourenço, Brazil
  2. From NP-C suspicion to clinical practice
    Julian Raiman, United Kingdom
  3. Latest advances in NP-C diagnosis: building on biomarkers
    Peter Clayton, United Kingdom
  4. After diagnosis: treatment and monitoring of the disease
    Marc Patterson, U.S.A.

Sponsored lunch symposium 4 – Prolonged Seizures: Optimal Management of a Medical Emergency
Room: E104-E107
Shire

  1. Introduction, Definitions and Epidemiology of Prolonged Seizures
    Emilio Perucca, Italy
  2. Prolonged Seizures: Mechanisms of Action of Rescue Medications
    Steve White, U.S.A.
  3. Pharmacological Treatment of Prolonged Seizures: Treating Epileptic Seizures by the Clock
    Helen Cross, United Kingdom
  4. Burden of Uncontrolled Prolonged Seizures and Status Epilepticus
    Alexis Arzimanoglou, France
Wednesday May 4th  
  12.15 – 13.45 Sponsored lunch symposium 4 – Early diagnosis and treatment: the cornerstone of effective management of Duchenne muscular dystrophy

Room: Emerald Room
PTC Therapeutics
.
Chair: Eugenio Mercuri, Italy
  1. A typical journey in Duchenne muscular dystrophy: from diagnosis to referral and treatment
    Rosaline Quinlivan, United Kingdom
  2. Why genetic testing is crucial for the accurate diagnosis of a patient with Duchenne muscular dystrophy
    Sylvie Tuffery-Giraud, France
  3. What do the latest data tell us about the use of ataluren in the management of patients with nonsense mutation Duchenne muscular dystrophy?
    Eugenio Mercuri, Italy
 Thursday May 5th   
  12.15 – 13.45 Sponsored lunch symposium 4 – Spotlight on SMA: latest perspectives and future landscapes
.
Room: Forum
Biogen
.
Chair: Ludo van der Pol, the Netherlands
  1. The continuum of disease symptoms and diagnosis of SMA
    Ludo van der Pol, the Netherlands
  2. Multidisciplinary management of patients with SMA
    Eugenio Mercuri and Elena Mazzone, Italy
  3. The evolving SMA treatment landscape: what does the future hold?
    Susan Iannaccone, U.S.A.