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Proceedings of the International Child Neurology Congress (ICNC) 2022: Poster Sessions
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Dr. Sahar M. A. Hassanein Professor of Pediatrics, Pediatric Neurology unit Faculty of Medicine - Ain Sham University

I have been a qualified Pediatric neurologist for almost 20-years, but my journey with child neurology began about 28years ago when my daughter was diagnosed as congenital hemiparesis due to perinatal stroke, she is an inspiring real-life hero. I am experienced in various fields of Pediatrics and child neurology, education, and conducting clinical research and publications, in Pediatric department, ASU since 1990. In addition, I got experience in hospital management and Joint Commission International (JCI) quality assurance and spent 13months as director of the Children’s hospital, ASU.

I always thought the ACNA is a unique platform having a comprehensive and global view of child neurology in Africa. I hope to take hands with my ACNA colleagues, who did great efforts to improve the lives of all African children through:

(1) Developing educational programs and training initiatives for resource-poor countries. As the creator of undergraduates and postgraduates’ eLearning courses of ASU and an admin since 2016, gave me experience in eLearning and Telemedicine. I hope to expand the scope of educational activities beyond the traditional ones and to set-up eLearning, telemedicine, and tele-education for emerging countries, where unmet needs across Africa are numerous.

(2) Development of registries.
My involvement with registries started in 2012 with the IPSS (International Pediatric Stroke Study in Canada), American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), and TREAT-NMD. I have already been serving on the Executive Committee of the IPSS since December 2020.

(3) Fostering collaboration with other associations; to work with IPSS, AACPDM, and TREAT-NMD as African partners.

(4) Promoting advocacy by increasing awareness, promoting good practice. We can set-up global African clinical practice guidelines, which I could help with as a committee member of Egyptian clinical practice guidelines.

(5) Fostering research in low-resource settings according to our prevalent diseases and suiting our resources.

Sahar_Hassanin_CV.pdf

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I am a child neurologist based in Nairobi,Kenya. I teach neurophysiology at Kenyatta University School of Medicine, and lead the clinical neurology service at the Gertrude’s Children’s Hospital: the largest tertiary children’s hospital in the East African region. I support supervision and training for the child neurology fellowship programme in Kenya which I helped found. I am also the founder and executive director of Afya Research Africa, an organization with an annual budget of USD 600K - 1M, whose core mission is to support access to sustainable quality health care services by under-served rural communities, and promote evidence synthesis and utilization by health workers.

I was instrumental in the founding of the National Epilepsy Coordination Committee, an umbrella organization that brings together stakeholders working in epilepsy in Kenya, and supports awareness and development of policies and guidelines in epilepsy. Recently, I have worked to promote access to genetic testing by children with neurological diseases in Kenya; improve capacity in neurophysiological services; facilitate access to medicines by children with spinal muscular atrophy; and promote regional collaboration in child neurology practice, research and scholarship. I maintain research interests in sickle cell disease, epilepsy and infectious encephalopathies.

In seeking the position of chair of the ACNA committee, I am interested in promoting ACNA’s mission to develop access to care; promote training; and advance research and collaboration in child neurology, in Africa. My work aligns with this mission and reflects a commitment to further ACNA’s objectives in my own small way. My background in developing organizations and leveraging technology for health solutions will serve in pushing ACNA’s agenda for access, capacity development, research, and collaboration.

Sam_Gwer_CV_brief_share_3.5.pdf