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Professor of Pediatric Neurology, Professor of Pediatrics, Faculty of Medicine, Ain Shams University
Prof. Dr. Sahar Hassanein, Professor of Pediatrics, Faculty of Medicine, Ain Shams University, a leading researcher in perinatal and childhood brain injury, and stroke. Contributes to research about stroke epidemiology, stroke awareness and prevention, early intervention following TBI. She has been involved in International Pediatric Stroke Study (IPSS) patient data entry since 2012 and an IPSS executive committee member since 2020. She is an international Pediatric Stroke Organization (IPSO) Steering Committee member, and editor-in chief for the IPSO newsletter. She has been an active member in the TREAT-NMD since 2012. Principal investigator in the Multicenter Cerebral Palsy Registry in Arabic Speaking Countries. Holds the position of African Child Neurology Association (ACNA) secretary.
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I am a child neurologist based in Nairobi,Kenya. I teach neurophysiology at Kenyatta University School of Medicine, and lead the clinical neurology service at the Gertrude’s Children’s Hospital: the largest tertiary children’s hospital in the East African region. I support supervision and training for the child neurology fellowship programme in Kenya which I helped found. I am also the founder and executive director of Afya Research Africa, an organization with an annual budget of USD 600K - 1M, whose core mission is to support access to sustainable quality health care services by under-served rural communities, and promote evidence synthesis and utilization by health workers.
I was instrumental in the founding of the National Epilepsy Coordination Committee, an umbrella organization that brings together stakeholders working in epilepsy in Kenya, and supports awareness and development of policies and guidelines in epilepsy. Recently, I have worked to promote access to genetic testing by children with neurological diseases in Kenya; improve capacity in neurophysiological services; facilitate access to medicines by children with spinal muscular atrophy; and promote regional collaboration in child neurology practice, research and scholarship. I maintain research interests in sickle cell disease, epilepsy and infectious encephalopathies.
In seeking the position of chair of the ACNA committee, I am interested in promoting ACNA’s mission to develop access to care; promote training; and advance research and collaboration in child neurology, in Africa. My work aligns with this mission and reflects a commitment to further ACNA’s objectives in my own small way. My background in developing organizations and leveraging technology for health solutions will serve in pushing ACNA’s agenda for access, capacity development, research, and collaboration.
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I have the honor to present to you my candidacy for the position of Chair of ACNA committee. My decision is motiveted by this following reasons :
- My seniority (1989);
- My professional experience;
- My position as the head of the first pediatric neurology department in Tunisia exclusively dedicated to the care of children and adolescents with neurological diseases, recently upgraded and renovated and the director of the research laboratory focused on neurological diseases in children and adolescents, allowing translational research from the patient's bed to the bench and vice versa, both located within a multipurpose and unique National Institute Mongi Ben Hmida, exclusively dedicated to neurosciences ;
- Actually president-elect of the Tunisian Child Neurology Association (www.tcna.tn)since 18 July 2020 up to July 2023. The TCNA is opened to all the African pediatric neurologists in a purpose to contribute to the development of pediatric neurology in Africa.
- Many national and international collaboration networks are already developped (Europeen Pediatric Neurology Society (EPNS), Société Européenne de neuropédiatrie (SENP), Moroccan Association of Pediatric Neurology (AMNP), Lybien, Mauritanien, Algerian pediatric neurology study groups, large social networks ...);
- I am supported by a team of motivated young and senior’s graduates neuropediatricians and the TCNA Office. So, I feel ready: 1- To take on my mission as chair of the ACNA committee as a driving force for the development of pediatric neurology in Africa in the fields of training, education, care, prevention and research, in a friendly framework of collaborative and leadership exchange with the ACNA committee and ACNA memberships, taking into account the needs and specificities of each African region. 2- To Represent ACNA and advocate the interests and needs of the ACNA at the ICNA level.
Project_for_the_development_of_the_pediatric_neurology_in_Africa-_Pr_I._Turki.pdf
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Chahnez Charfi Triki was born in Sfax, graduated from the University of Sfax, Tunisia. She completed her postgraduate training in child neurology in University Catholique Louvain in Brussels and Kremlin Bicêtre in France. As a lecturer at the University of Sfax, she founded a child neurology unit and later a child neurology department at the Hedi Chaker Hospital in Sfax (https://www.medecinesfax.org/fra/s196/pages/56/CHU-H.-Chaker).
Right from the start of her career, she was challenged by the lack of comprehension on behalf of neurologists and pediatricians regarding the particularities of treating children suffering from neurological diseases, who considered neuropediatrics to be only the physicians of those who are disabled. The treatment of these patients made her aware of the relevance of parents' associations and research to enhance the care of these children. She was the instigator of the development of 6 scientific and parents associations in Tunisia. Dr Triki established a care center for children with cerebral palsy, followed by a regional network for the early treatment of children with cerebral palsy, and later by the Tunisian Association of Cerebral Palsy.
The management of children with epilepsy was challenged by a limited knowledge of this subject, which was not an area of interest for neurologists and pediatricians. A master's degree in epileptology was created in 2000 and made available online in 2005. This master's degree has allowed the dissemination of updated knowledge on epilepsy to physicians in Tunisia but also in several African countries (Algeria, Morocco, Senegal, Niger, Mali and Chad). The implementation of a drug-resistant epilepsy unit in child neurology depatement in Sfax was followed by the launch of a European research project (www.seedtwinning.com) focusing on the improvement of the epileptic encephalopathy management.
The objectives of this twinning project are to strengthening the expertise of researchers at the University of Sfax about the clinical and genetic diagnosis of EE. Her tenure as chair of the IBE in the Mediterranean Region and chair of the ILAE in the Eastern Mediterranean Region has allowed Dr. Triki to execute her program for improving knowledge and support for epilepsy. During her tenure of 2017-2021 as ILAE-EMR chair and with the collaboration of the EMR office, Dr. Triki has initiated two annual regional epilepsy courses in French and English, a fellowship program for young epileptologists, a visiting professors program, and most notably during the pandemic, an educational webinar program about epilepsy in both French and English for the EMR region.
Since April 2021, this program has evolved into a collaboration with the regional office in Africa. In order to assist doctors in the proper interpretation of the EEG, a website has been created (http://www.eeg.devsfax.org). To sustain these activities with future boards, a workbook has been made available to the new board members. Dr. Triki has published over 100 peer-reviewed research articles. Dr. Triki has organized an ICNA workshops in Sfax, Tunisia in 2015. She has been an active member of the ICNA Executive Board since 2018, serving on both the Education and Nominating committees.
