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Prof Haluk Topaloğlu

Position Statement: Emerging genetic therapies for rare disorders at high cost, cannot realistically address the global burden of disease


Emerging genetic therapies for rare disorders at high cost, cannot realistically address the global burden of disease - Stakeholders must develop new pathways to ensure safe, fair and sustainable provision of such therapies A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000 people and based on the Food and drug administration (FDA) definition from the US, when it affects less than 200,000 at any one time. Genetic factors contribute to the etiology in 80% of those with rare diseases, and other contributing factors, including infection, account for the remaining the cases....
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ICNA

ICNA Executive Board 2014-2018

ICNA Executive Board 2014-2018
President : Ingrid Tein Secretary : Jo Wilmshurst Treasurer : Linda De Meirleir Executive Board   Roberto Caraballo, Argentina Silvia Tenembaum, Argentina Lakshmi Nagarajan, Australia Russell Dale, Australia Lieven Lagae, Belgium Marilisa Guerreiro, Brazil Sergio Rosemberg, Brazil Michael Shevell, Canada Pratibha Singhi, India Masaya Segawa, Japan Takao Takahashi, Japan Charles Newton, Kenya Jaime Campistol, Spain Michèl Willemsen, The Netherlands Banu Anlar, Turkey Helen Cross, United Kingdom Jonathan W. Mink, USA Kenneth Mack, USA Michael Johnston, USA Robert Rust, USA Sakkubai Naidu, USA  
ICNA

Thankyou for supporting the ICNA

tHE icna WOULD LIKE TO THANK THE FOLLOWING MEMBERS FOR THEIR GENEROUS SUPPORT !

Donald Gilbert, Cincinnati, USA
Chrysanthy Ikonomidou, Wisconsin, USA
Adam Kirton, Calgary, Canada
Katherine Mathews, Iowa City, USA
Radha Giridharan, New York, USA
Marcio Sotero de Menezes, Washington, USA
Donna Ferriero, USA

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ICNA

ICNA Newsletters

Newsletters of the International Child Neurology Association
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ICNA

ICNA Membership Types and Benefits

ICNA is a respected international group of child neurologists who wish to advance the care of children with neurological problems throughout the world.

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