ICNA Educational Meeting at the University of West Indies, Kingston, Jamaica Oct. 8, 2016


An ICNA educational satellite meeting which focused on six topics involving pediatric epilepsy, neuromuscular disorders and neurometabolic disorders was held Oct. 8, 2916 at the University of West Indies (UWI) in Kingston, Jamaica (details provided below). This was the first ICNA initiative in Jamaica. Our satellite was part of the 7th Biennial Conference of the Dept. of Child and Adolescent Health of the University of West Indies. Our team was very graciously received by our local hosts and our...
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US FDA approves Nusinersen - The first treatment for SMA


The U.S. Food and Drug Administration (FDA) approved Biogen's SPINRAZA™ (nusinersen) under Priority Review for the treatment of spinal muscular atrophy (SMA) in pediatric and adult patients. SPINRAZA (nusinersen) ​ is the first and only treatment approved in the U.S. for SMA. In ENDEAR, a pivotal controlled clinical study, infantile-onset SMA patients treated with nusinersen achieved and sustained clinically meaningful improvement in motor function compared to untreated study participants. In ad...
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Prof. Dieter Janz [1920-2016]

Prof. Dieter Janz, Berlin, an iconic figure in the history of epileptology has passed away on December 24, 2016. He was 96 years old. Prof. Janz has made numerous contributions to the field of epileptolgy. In 1957, Janz and Walter Christian described "juvenile myoclonic epilepsy", which was later named after Janz, as a syndrome ​. Prof. Janz, among other things, drew attention to the teratogenic effects of antiepileptic drugs and was also one of the first to report the l...
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ICNA needs your support

Dear colleagues,

We are writing today to ask for your support for the International Child Neurology Association (ICNA) and its activities.  http://www.icnapedia.org

The work that ICNA performs is entirely financed from funds raised.  Membership is now free and has grown considerably to over 2,000 members since we implemented this policy in 2012.  

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Professor Brian Neville 1939-2016

It is with great sadness that we report the passing of Brian Neville, formerly Professor of Paediatric Neurology at UCL Institute of Child Health, London 1989-2004, and The Prince of Wales’s Chair of Childhood Epilepsy 2004-2007, in the early hours of 14th December 2016. He had battled ill health over a long period of time. As the first Chair of Paediatric Neurology in the UK, he set up the first academic department of Paediatric Neurology and Neurodisability at Great Ormond Street Hospital and the Institute of Child Health (later UCL-ICH). He wrote the training programmes for Paediatric Neurology for Europe...
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