Linda Joanna DE MEIRLEIR [1954-2018]

linda de meirleir
It is with the deepest sorrow that I announce our much loved ICNA Executive Board member and highly esteemed friend and colleague, Dr. Linda De Meirleir, passed away Oct. 31, 2018, after a long and courageous battle with illness. She was born in Antwerp, Belgium, March 13th, 1954 and was happily married to Jacques, with two children, Laura and Ben. Dr. De Meirleir obtained her medical degree at the Vrije Universiteit Brussels in 1979. She became a specialist in Neuropsychiatry in 1984 and Paediatric Neurology in 1997. From 1984 – 1985 she was a Clinical Fellow in Paediatric Neurology, at the...
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ICNA Research Initiatives

The ICNA Research Committee operates to share views on key issues, best practice and current research developments in child neurology. The committee aims to brings members together to develop and collaborate on key research initiatives. Through the Connectome Project the ICNA willl create opportunities for trainees and young scientists to engage in conversation with major stake holders and established research groups to advance research in child neurology.  ICNApedia - Symposia on Research ...
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Position Statement: Emerging genetic therapies for rare disorders at high cost, cannot realistically address the global burden of disease

Emerging genetic therapies for rare disorders at high cost, cannot realistically address the global burden of disease - Stakeholders must develop new pathways to ensure safe, fair and sustainable provision of such therapies A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000 people and based on the Food and drug administration (FDA) definition from the US, when it affects less than 200,000 at any one time. Genetic factors contribute to the etiology in 80% of those with rare diseases, and other contributing factors, including infection, account for the remaining the cases. The...
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Cures Within Reach announces Industry Patient Impact Clinical Award for Prof Lieven Lagae

Prof Lieven Lagae, ICNA Executive Board Member &  Director of the Childhood Epilepsy Program at the KUL University Hospitals is the recipient of "Cures within Research" 5th Annual Global Health Repurposing Awards. Prof Lagae has been awarded the new Industry Patient Impact Clinical Award.

Award recipients will be recognized at the Global Health Repurposing Awards on June 27, 2017 at the 6th Annual Global Health Drug Repositioning and Repurposing Conference in Chicago, IL.

We are very proud to acknowledge the achievements of our fellow ICNA Executive Board member, Dr. Lieven Lagae of KUL University Hospitals in Belgium, for his "Cures Within Reach Industry Patient Impact Clinical Award 2017" which has been given in recognition of his pioneering research and world-wide efforts to repurpose the drug fenfluramine for Dravet syndrome patients.

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Professor Lieven Lagae awarded the 2nd Aicardi Award Lecture 2019

The ICNA congratulates Professor Lieven Lage on being awarded the Aicardi Lecture 2019 for his contributions to child neurology. The biennial Aicardi Award established by the European Paediatric Neurology Society (EPNS) in partnership with MacKeith Press  recognises a respected and admired doctor who has attained major achievements in child neurology.  Recipients of the award must practice in Europe using the countries in the WHO European region. The 2029 award presentation and lecture took at the EPNS Congress in Athens on 17 September 2019. Professor Lagae gave the Aicardi Lecture on the " Miss Understanding is the Greek Goddess of Clinical Research" where he talked about...
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