Introduction Early presentation of children with infantile epileptic spasms syndrome (IESS) for treatment is highly dependent on the ability of parents or caregivers to recognize IESS. Regrettably, the level of parental knowledge on this condition is critically low in our setting. Our study aimed to raise awareness and educate parents on IESS to promote early diagnosis and treatment.

Methods We carried out educational activities on IESS on antenatal clinic and vaccination days throughout the month of August in health facilities in the North-West region of Cameroon, targeting pregnant women and parents of neonates and infants. Health talks about infantile epileptic spasms and videos of children with IESS were shown so that the participants could recognize the manifestations of IESS. More emphasis was placed on the importance of early presentation, diagnosis, and treatment. Pre- and post-campaign surveys were conducted and compared to assess the impact of the campaign.

Results A total of 2560 participants were educated. Additionally, we also trained 67 healthcare workers during the campaign. Prior to the campaign, more than 90% of the participants had never heard about IESS. There was a significant increase in both knowledge and positive attitudes, indicating that the health talks were successful in educating the participants to recognize IESS. There was significant engagement and enthusiasm amongst the participants during the health talks as they asked questions.

Conclusion: Awareness-raising on IESS can improve public knowledge on IESS, leading to early diagnosis, treatment and better outcomes.

Mundih Njohjam
National University Hospital Center
Senegal

Niegem Mbwame
University of Bamenda
Cameroon

Sancho Kwanda
University of Bamenda
Cameroon

Swirri Nji
University of Bamenda
Cameroon

Nforbi Ngwa
Bamenda Regional Hospital
Cameroon

Matilda Angitoh
Epilepsy Awareness, Aid and Research Foundation
Cameroon

Fru Azah
University of Bamenda
Cameroon

Melanie Leka
Bamenda Regional Hospital
Cameroon