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Haluk Topaloğlu, MD, is a Professor of paediatrics and neurology at Hacettepe University School of Medicine in Ankara, Turkey since 1996. He is the current secretary of the World Muscle Society (WMS). He received the Gaetano Conte Academy of the Mediterranean Society of Myology (MSM) award in clinical neuromuscular disorders in 2015. He is a member... of the Turkish Academy of Sciences (TÜBA) and Executive Board Member of the International Child Neurology Association (ICNA). More
Prof Haluk Topaloğlu

Position Statement: Emerging genetic therapies for rare disorders at high cost, cannot realistically address the global burden of disease


Emerging genetic therapies for rare disorders at high cost, cannot realistically address the global burden of disease - Stakeholders must develop new pathways to ensure safe, fair and sustainable provision of such therapies A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000 people and based on the Food and drug administration (FDA) definition from the US, when it affects less than 200,000 at any one time. Genetic factors contribute to the etiology in 80% of those with rare diseases, and other contributing factors, including infection, account for the remaining the cases....
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Prof Haluk Topaloğlu

Professor Yavuz Renda (1932-2015)

Professor Yavuz Renda (1932-2015)

The founding father of Turkish Child Neurology, Professor Yavuz Renda (b.1932) has passed away on the 24th of July, 2015 after a long illness. His family roots aided Mustafa Kemal Atatürk in the construction of Modern Turkey in 1923.

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