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ICNA

Linda Joanna DE MEIRLEIR [1954-2018]

linda de meirleir
It is with the deepest sorrow that I announce our much loved ICNA Executive Board member and highly esteemed friend and colleague, Dr. Linda De Meirleir, passed away Oct. 31, 2018, after a long and courageous battle with illness. She was born in Antwerp, Belgium, March 13th, 1954 and was happily married to Jacques, with two children, Laura and Ben. Dr. De Meirleir obtained her medical degree at the Vrije Universiteit Brussels in 1979. She became a specialist in Neuropsychiatry in 1984 and Paediatric Neurology in 1997. From 1984 – 1985 she was a Clinical Fellow in Paediatric Neurology, at the...
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ICNA

Herman Doose [1927-2018]

Professor Hermann Doose, whose name is entwined with Myoclonic Astatic Epilepsy otherwise known as “Doose Syndrome” passed away on April 23rd, 2018 following a brief illness. He was 90yrs old. Professor Doose was a founding member of the neuropediatric society in Germany.Hermann Doose was born on September 1927 in Lübeck, North Germany. His father was a surgeon and mother a gynaecologist. At the age of 16 he was recruited to the army during the last year of the war. A subsequent injury and admission to hospital resulted in him being the lone survivor of the group.  Doose studied medicine at the...
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Intellectual Disability, Seizures, Abnormal Gait, and Distinctive Facial Features - New Gene identified

  Researchers at Children's Hospital of Philadelphia (CHOP) have pinpointed variants in the WDR26 gene to a rare syndrome characterized by intellectual disability, seizures, an abnormal gait and distinctive facial features. In a study published in the American Journal of Human Genetics Deardorff, first author Cara M. Skraban, MD, also of CHOP, and co-authors from medical centers in six countries reported on  15 individuals now known to have this recognizable syndrom...
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ICNA

ICNA needs your support

Dear colleagues,

We are writing today to ask for your support for the International Child Neurology Association (ICNA) and its activities.  http://www.icnapedia.org

The work that ICNA performs is entirely financed from funds raised.  Membership is now free and has grown considerably to over 2,000 members since we implemented this policy in 2012.  

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EpilepsyDiagnosis.Org – a novel online diagnostic manual of the epilepsies

Background 

Although there is much information on the internet about epilepsy and seizures, there is a glaring absence of a single source of information that aligns with the international classification and provides an organized presentation of the many seizure types and syndromes to help with diagnosis and treatment. This information gap was recognized and led to the ILAE's EpilepsyDiagnosis.Org project which was formally launched in September 2014. It has been a unique resource in medicine and has harnessed the power of the internet to present the complexity of the significant amount of new information now available about the epilepsies and their etiologies, in a manner that is concise, current and accessible to a global audience. It is as relevant to those in primary and secondary health care settings as it is to those in tertiary epileptology practice. It is also showing promise as an instructional and training resource for those who are new to medicine. 

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