Intellectual Disability, Seizures, Abnormal Gait, and Distinctive Facial Features - New Gene identified

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  Researchers at Children's Hospital of Philadelphia (CHOP) have pinpointed variants in the WDR26 gene to a rare syndrome characterized by intellectual disability, seizures, an abnormal gait and distinctive facial features. In a study published in the American Journal of Human Genetics Deardorff, first author Cara M. Skraban, MD, also of CHOP, and co-authors from medical centers in six countries reported on  15 individuals now known to have this recognizable syndrom...
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Isabelle Rapin, MD (1927-2017)

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The International Child Neurology Association (ICNA) is deeply saddened to hear the passing of Isabelle Rapin, MD. Dr Rapin, a true giant in the field of child neurology has helped found the International Child Neurology Association and has been a staunch supporter of its activities and ICNApedia all her life.

Dr Rapin was a member of the first executive board of the ICNA (1973–1975) and Chairman of the Program Committee for the first ICNA Congress  October 6–10, 1975 held in Toronto.She was also the recipient of the ICNA Frank R. Ford Award in 1990 and delivered her Lecture on "Autism as a neurological disorder" at the Toronto congress in 1990. She had previously received the Hower award from the Child Neurology Society, USA in 1987. Dr Rapin's other awards and recognitions include the President's Award from the American Academy of Neurology, Honorary Alumna status from the Albert Einstein College of Medicine, Award for Excellence in Autism Research from the Autism Society of America and the Shriver Center Award.

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Inviting symposia proposals for the 15th International Child Neurology Congress

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It is a great pleasure to welcome you to submit proposals for symposia for the 15th International Child Neurology Congress that will take place in the enchanting city of Mumbai, India, November 15-18, 2018. The theme for the Congress is "Protecting the developing brain and preventing disability". The ACON is the local organizer and host of the Congress, in which Child Neurologists from all over the world will meet at the Grand Hyatt Hotel in downtown Mumbai. 

We invite you to submit proposals for Symposia. All proposals must be submitted through this website in the period from May 08, 2017 to September 30, 2017. Three to four symposia will be held concurrently each morning of the four day Congress. 

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Welcome to the 15th International Child Neurology Congress

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On behalf of the International Child Neurology Association, it is my great pleasure to welcome you to the 15 th International Child Neurology Congress being held in Mumbai, India in Nov. 2018. Our congress theme is 'Protecting the developing brain'. We aim to provide an overview of Childhood Neurological Disorders from a Global Perspective with strong representation from all six major geographic regions. The scientific program will feature internationally recognized experts who will provide the latest advances within different subspecialties of child neurology, including two tribute lectures to honour the lifetime contributions of two remarkable pioneers of Child Neurology, Dr. Yukio Fukuyama and Dr. Masaya Segawa. This will be combined with a strong educational program through breakfast teaching courses, workshops, afternoon tea symposia with algorithmic approaches and instructive case presentations and evening master classes.

Several exciting ICNA initiatives will also be featured. There will be a symposium dedicated to a review of the integral components of solid clinical research methodology and rigorous study design including the needed framework for prospective randomized, double-blind, placebo-controlled trials. The ICNC2018 

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Cures Within Reach announces Industry Patient Impact Clinical Award for Prof Lieven Lagae

Prof Lieven Lagae, ICNA Executive Board Member &  Director of the Childhood Epilepsy Program at the KUL University Hospitals is the recipient of "Cures within Research" 5th Annual Global Health Repurposing Awards. Prof Lagae has been awarded the new Industry Patient Impact Clinical Award.

Award recipients will be recognized at the Global Health Repurposing Awards on June 27, 2017 at the 6th Annual Global Health Drug Repositioning and Repurposing Conference in Chicago, IL.

We are very proud to acknowledge the achievements of our fellow ICNA Executive Board member, Dr. Lieven Lagae of KUL University Hospitals in Belgium, for his "Cures Within Reach Industry Patient Impact Clinical Award 2017" which has been given in recognition of his pioneering research and world-wide efforts to repurpose the drug fenfluramine for Dravet syndrome patients.


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